Your Health Record

Sharing Healthcare Records

What do we mean by sharing healthcare records and why do we do it?

Healthcare organisations across Leeds are working together to further improve health and social care across the city. Health and care professionals have a duty to share relevant information between themselves if they are involved in providing you with care. For example, in Leeds you have your own Leeds Care Record.

This Leaflet describes how else we share your information.

Data Collection Information for Patients

From January 2016, the Health and Social Care Information Centre (HSCIC) will soon begin to collect anonymous data from the general practice clinical system on patients who have been issued with a fit note. This information is required by the HSCIC under section 259(1) of the Health and Social Care Act 2012. In line with section 259(5) of the Act, all general practices in England must comply with this requirement and provide information to the HSCIC in the form, manner and period specified in this Data Provision Notice. This Notice is issued in accordance with the procedure published as part of the HSCIC duty under Section 259(8).

Anonymised data on the use of fit notes is being provided to the HSCIC on behalf of the Department of Health, and the Department for Work and Pensions. This will enable the Department for Work and Pensions to undertake research analysis to inform policy relating to employment and sickness absence including evaluation of Fit for Work

The data collected includes the type and duration of the fit note, recommendations for adjustments to enable return to work, diagnostic codes, geographical area and gender.
You may want to prevent confidential information about you from being shared or used for any purpose other than providing your care.  If you do not want information that identifies you to be shared outside your GP practice, please inform the practice and we will make a note of this in your medical record.  This will prevent your confidential information from being used other than in special circumstances required by law, such as a public health emergency.  This is known as a type 1 objection.

The HSCIC also makes national collections of information from other places where you receive care, such as hospitals and community services.  They only release this information in identifiable form where there is legal approval to do so.  You can opt out of this identifiable information leaving the HSCIC for purposes beyond your direct care.  This is known as a type 2 objection.  The only exceptions to this are very rare circumstances, such as a civil emergency or a public health emergency.

Additional links to include on practice websites: ICO information page for the public:www.ico.org.uk/for-the-public

HSCIC information page about collections:

www.hscic.gov.uk/article/4963/What-we-collect

HSCIC information pages for the public:

www.hscic.gov.uk/yourinfo

www.hscic.gov.uk/article/3388/How-we-look-after-information

For details on how this data may be used visit: www.gov.uk/dwp/fit-note-data

This practice is required to supply personal health data to comply with its legal obligations from time to time, as directed by the Secretary of State for Health, or other recognised Statutory Authority.

Summary Care Record

NHS England requires practices to enable successful automated uploads of any changes to patients’ summary information, at least on a daily basis, to the Summary Care Record (SCR).
Having your SCR available will help anyone treating you without your full medical record. They will have access to information about any medication you may be taking and any drugs to which you have a recorded allergy or sensitivity.
Of course, if you do not want your medical records to be available in this way then you will need to let us know so that we can update your record. Your SCR will be automatically updated on at least a daily basis to ensure that your information is as up to date as it can be.

Detailed Coded Record Access

NHS England required practices to enable patients to have online access to a more detailed version of their medical record (rather than the Summary Care Record). This access will not include free text, letters, attachments and administrative items.
There are circumstances where a GP may believe it is not in the best interests of the patient to share all information in the record, for example, where it could cause harm to their physical or mental health. GPs will be provided with the tools to withhold coded information where they judge it to be in the patient’s interests or where there is reference to a third party.
Ireland Wood and Horsforth Medical Practice are committed to implementing this system but we do stress that your medical record is designed to be used by clinical professionals to ensure you receive the best possible care. Some of the information within your medical record may be highly technical, written by specialists and not easily understood.